Thalassemia is a heartbreaking reality that affects entire families. It’s a painful sight to see a child struggling to breathe, relying on blood transfusions just to survive. Parents bear the emotional weight, feeling helpless as they navigate hospital corridors, arranging transfusions, and dealing with the uncertainty that comes with each passing month.
What makes it even more devastating is that it’s a hereditary disease, passed down from parents to children. If not detected early, Thalassemia can forever change a child’s life, making them dependent on transfusions and medical treatments. The thought of a child enduring needles and treatments instead of playing and enjoying life is unbearable but the good news is that Thalassemia can be prevented. A simple blood test before marriage can make all the difference. It’s a small step that can save a child’s life and spare their family from the pain and struggle that comes with this disease.
The problem is, our society often stays silent about these issues. But silence can be a crime when lives are at stake.
Recognizing the hereditary nature of thalassemia, the KP government initiated voluntary pre-marital screening programs for thalassemia. This initiative aims to identify carriers and reduce the incidence of the disease through informed marital choices. To support this, a steering committee comprising members from local government and health departments was established to oversee the enforcement of related laws. Measures include ensuring that Nikah registrars are aware of the Muslim Family Law Act, 1962, which mandates pre-marital screening, and imposing penalties for non-compliance.
In terms of treatment, the KP government has increased the budget for thalassemia control and plans to establish thalassemia centers in district headquarter hospitals and Medical Teaching Institutes across the province. These centers will provide treatment and raise awareness about thalassemia. Additionally, there are plans to include thalassemia treatment in the Sehat Insaf Card program, ensuring financial support for affected families.
Complementing the government’s efforts, Jehaad for Zero Thalassemia (JZT) has emerged as a pivotal force in the fight against thalassemia. Originating from the University of Central Punjab, JZT has expanded its reach across Pakistan, including Khyber Pakhtunkhwa. With a volunteer base exceeding 7,000 individuals, JZT focuses on raising awareness about the importance of pre-marital thalassemia screening and organizing blood donation drives to support patients. Their “Each One, Ease One” initiative encourages volunteers to support thalassemia patients by providing financial assistance for medical and educational needs. In Khyber Pakhtunkhwa, JZT has conducted seminars, awareness walks, and blood donation camps to educate the public and support affected families.
Through these comprehensive efforts, the KP government, in collaboration with organizations like JZT, is striving to reduce the prevalence of thalassemia and support affected individuals and their families.
By: Laiba Umair from women university swabi
